Consideraciones bioéticas en el manejo de la esclerosis lateral amiotrófica: Una aproximación al quehacer fonoaudiológico

Translated title of the contribution: Bioethical Considerations in the Management of Amyotrophic Lateral Slerosis: An Approach to Speech Therapy

Jorge Sepúlveda-Contreras*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Introduction. Amyotrophic lateral sclerosis (ALS) is the most common form of de­generative motor neuron disease in adulthood and is considered a terminal disease. For this reason, the actions of the speech therapist must consider respect for basic bioethical principles to guarantee adequate assistance. Objective. To know those bioethical considerations related to the management and study of people with ALS to then provide an approach to speech therapy. Methodology. A bibliographic search was carried out in the PubMed, Scopus, and SciELO databases. Articles published from 2000 to June 2023 were filtered and those that addressed a bioethical component in the population with ALS were selected. Results. Aspects related to the use of informed consent and shared decision-making stood out as essential elements to support people’s autonomy. Conclusion. Proper communication and shared decision-making are key to respect­ing people’s autonomy. In turn, the standardization of procedures through clinical research will contribute to compliance with the bioethical principles of beneficence and non-maleficence, essential for professional practice.

Translated title of the contributionBioethical Considerations in the Management of Amyotrophic Lateral Slerosis: An Approach to Speech Therapy
Original languageSpanish
Pages (from-to)169-180
Number of pages12
JournalRevista de Investigacion e Innovacion en Ciencias de la Salud
Volume6
Issue number1
DOIs
StatePublished - 2024

Bibliographical note

Publisher Copyright:
© 2024. Fundación Universitaria María Cano.

ASJC Scopus subject areas

  • Health Professions (miscellaneous)
  • Physical Therapy, Sports Therapy and Rehabilitation
  • Occupational Therapy
  • Public Health, Environmental and Occupational Health
  • Speech and Hearing

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